Rae Rose
disability, creativity
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I had this “great” idea to make something like a busy board out of fabric. 1. I collected some fabric, an old blanket that was falling apart as backing and some contrasting fabric. 2. With the fabric right sides together I added the blanket. I sewed it almost the entire way around, leaving an opening…
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This is Elro’s first Christmas — we’re an interfaith family — and I wanted a tree full of handmade ornaments. This included a lot of woodland creatures I made out of felt — from Benzie Designs because they offer the most amazing felt ever — pinecones painted white or gold, houses made out of paper…
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“that destroys souls!” — Carlo, My Man Godfrey Disability turns you away the first time. You have to document how, in my case, crazy I was, how unfit I was to be working. I got interviews from my friends, family and roommates. I read them. They all talked about me like I couldn’t do anything…
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I dared myself to embrace what gives me the ability to be a mother, a writer, a wife. To SPELL OUT exactly what my body needs. It made all the right people uncomfortable — “You’re going to wear THAT In a holiday photo?” YEP. It made all the right people, the people in my life…
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After my 6 hour brain surgery to remove a cavernoma in my midbrain, I woke up and remembered what the doctor had said — that I could lose some faculties from the surgery. I tried to lift my leg. It didn’t work. I tried to move the other. I could lift it about an inch.…
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This is what I normally look like. Happy and enjoying my daughter and the day. So I was wildly upset with myself this morning. Sitting with my daughter in her play pen I tried not to cry. I could barely move. I couldn’t get up to change what was on the tv even though it…
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Six month Elro finds one thing absolutely hilarious: a sneeze. If the dog sneezes she laughs uproariously. She isn’t interested in books, so I made her a little rhyming book in which an elephant invites a lot of animals over for dinner. They all arrive on time and under the weather. When I read it…
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Someone posted a picture of them huddled together in an office building during a wild fire. My first thought was – “That’s what I need my brain to do! More of that!” I need the sweet, creative parts and the mean, destructive parts to get along. To huddle. To realize that there are other things…
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Childproofing my house scares me. I go to bed thinking of bobbins rolling under a couch or a pin falling from some almost-finished doll. I told my husband I thought I would stop making things for awhile — until she was old enough not to swallow a bobbin. He said absolutely not and reminded me…
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My friend Laura Gail Grohe posted this quote by Doris Lessing on my Facebook wall and I latched on to both the words and the image with an enthusiasm that even Elmo from Sesame Street would say wooooaaaah, calm down, you’re giving me a headache. The conditions are ALWAYS impossible! #aptAF The laundry always needs…
Rae Rose 